Where people with ITP, healthcare professionals, and caregivers get and give advice.
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Open up about about ITP. Many people don't know what ITP can do to a body so it's good to speak about it. Also helps you in the future.
Sue
Living with ITP Age: 32 Female
1
Use a platelet tracker to keep track of your platelet counts.
Living with ITP Age: 45
5
QUESTION OF THE DAY:
Stress, anxiety, and other emotions can go hand-in-hand with ITP. What’s your coping strategy?
ITP knocks down platelets … people who have been diagnosed with ITP always want to know how to make more platelets….but you can’t really eat more papaya (or any othe ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
5
There are data that suggest your immune system is not what it should be if you don’t get enough sleep. Getting enough sleep is part of a healthy lifestyle.
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
4
Please take care of yourself -- this disorder makes you ill 🤒. I recommend an ITP DIET. Avoid processed food and choose forest-grown and field-grown food.
SYED MUZAFFAR
Care Partner for ITP Age: 23 Male
6
Medications like aspirin or ibuprofen, and some supplements like fish oil, alter the way platelets work, and so they can potentially put someone at increased risk fo ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
I’m a huge fan of educating yourself to really understand what’s going on. I think it makes you more susceptible to complications if you don’t have awareness of what ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p> If you have a child with ITP who is also a picky eater, consider meeting with a dietitian who can help with meal planning.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
Be patient with your body! With any autoimmune disease flares can happen any time the immune system is stimulated -- even something like a flu shot can aggravate the ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Meet with a registered dietitian so you have your unique dietary needs calculated and get advice for a nutritional plan that is right for your specific needs.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2
Find a doctor who is willing to work with you to find the right treatment. Every ITP patient is different, and what works for some patients may not be ideal for you. ... read more
RareCandace
Living with ITP Age: 34 Female More than 5 years
4
Be careful not to bump into doorways, sharp corners, etc. Having ITP means it's easy to bruise. I have found that "rubbing" the spot if you bump it does help. The ol ... read more
Care Partner for ITP Age: 90 Female
4
Lots of people with ITP take corticosteroids as part of treatment and these drugs can mess with blood sugars. Having a balanced diet that gives you all the nutrients ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2
Other people around you really need to know about your ITP, especially when it comes to emergency situations when you can’t speak for yourself. Your friends should k ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
6
When you’re cooking or preparing food, take your time, move slowly, be aware when you have sharp utensils in your hands. Think about what sorts of things you can do ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
We got my son a medical alert bracelet so if anything happens paramedics will know of his condition.
EvanJace
Care Partner for ITP Age: 30 Female
5
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>Meal planning and meal prep are so important for people with ITP. I recommend “Meal Prep for Beginners” by Toby Amidor, MS, RD, CDN and my book, too, “The Anti-Infla ... read more
Ginger Hultin, MS, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
If you're a woman living with an autoimmune disease like ITP, talk with your healthcare provider about hormone levels. If your menstrual cycles are irregular, you ma ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
Poll
Does food help you manage ITP?
My son has chronic ITP and when his platelet numbers are under 70,000, we are very cautious about activities that he could potentially get hurt from. When that is th ... read more
EvanJace
Care Partner for ITP Age: 30 Female
3