Where people with MS, caregivers, and professionals get and give advice.
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I use a splint for my worse leg with MS, and it really does help.
Living with Primary-Progressive MS (PPMS) Age: 42 Male More than 5 years
2
My electric "car" cart gives me freedom and independence to get around town and do anything I want!
Living with Secondary-Progressive MS (SPMS) Age: 68 Female More than 5 years
2
QUESTION OF THE DAY:
When fatigue sets in, this is the best thing I can do for myself:
Keep moving! It’s better to be on this side of ground. I tell myself this every day. Not everyone has a strong faith, but I do and it has helped me.
Amanda
Living with Relapsing-Remitting MS (RRMS) Age: 48 Female More than 5 years
7
Follow your neurologists's advice.
Lori Nelson
Living with Relapsing-Remitting MS (RRMS) Age: 56 Female More than 5 years
3
Throughout my journey with MS, I’ve learned that being informed about my progression and the symptoms I am experiencing is one of the most valuable things I can do f ... read more
Montel Williams
Former talk show host Living with Secondary-Progressive MS (SPMS) Age: 63 Male More than 5 years
17
Let people help you. A community of support will help you get through the tough times. Seek empathy, not sympathy. Namely, look for those who actually help you inste ... read more
Barbara
Living with Relapsing-Remitting MS (RRMS) Age: 56 Female More than 5 years
4
Do as much as you can for as long as you can. Don't put activities or things you want to do off until another day. Each day with this condition is unknown. Keep posi ... read more
Lori
Living with Relapsing-Remitting MS (RRMS) Age: 44 Female Less than 1 year
27
Chef With MS Provides Meal-Prep Tips
Chef With MS Provides Meal-Prep Tips
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The Secret to Getting Out of Bed Each Morning
4 Reasons Gardening Is the Perfect Hobby for MS
Keep cool. Exposure to heat often makes MS fatigue worse. Drink iced beverages, utilize a cooling vest, minimize your time in warm environments, and promptly treat i ... read more
Kathy Costello, NP
Healthcare provider for Multiple Sclerosis Female
5
I recently had a baby, and I found the pregnancy extra-tiring this time around. My saving grace was getting to bed early and at the same time every night and taking ... read more
Eimear
Living with Relapsing-Remitting MS (RRMS) Age: 39 Female 1 to 5 years
6
Weighted blanket. It doesn't stop the spasms but the weight gives me a different sensation to focus on so I can fall asleep.
Alex
Living with Relapsing-Remitting MS (RRMS) Age: 29 Female 1 to 5 years
6
If you're having mood swings, talk to a counselor or join a support group — or both. Decreasing isolation in itself helps, and knowing you're not the only one experi ... read more
Andrea Arzt, LCSW
Healthcare provider for Multiple Sclerosis
5
Slowing down and practicing mindfulness
Living with Relapsing-Remitting MS (RRMS) Age: 44 Female More than 5 years
1
I ensure that I have a couple healthy snacks for myself that are grab-and-go, for days when I don’t have the energy to go make a more elaborate breakfast or lunch. I ... read more
Julie Blackburn
Living with Primary-Progressive MS (PPMS) Age: 40 Female 1 to 5 years
5
I’m 74 and have been living with PPMS for 20-plus years. There is no silver bullet for this disease but there are few things that I do to improve my day to day livin ... read more
Living with Primary-Progressive MS (PPMS) Age: 74 Male
7
Think of yourself as the chief wellness officer of Your Health Inc. If you can’t be your own CEO, find a family member or friend who can be your health advocate.
Nancy Davis
Founder and Chairwoman of RacetoEraseMS Living with Multiple Sclerosis Female More than 5 years
137
Be okay with saying "no"; some social events and responsibilities will be too difficult for you at certain points and saving your energy will become an important par ... read more
Brittany Ferri, OTR/L, CCTP
Founder Simplicity of Health, LLC, Rochester, NY Healthcare provider for Multiple Sclerosis Age: 27 Female
1
Fast Fact
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.
Neurology
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.I have learned to laugh at myself when a part of my body decides it's not going to work properly. If I fall or can't move something, I look at it as a mini challenge ... read more
Laura
Living with Relapsing-Remitting MS (RRMS) Age: 43 Female 1 to 5 years
8
Sharing blogs, memes, articles, etc., that resonate with you might help your family, friends, and employers understand your MS a little bit better.
Trevis
Living with Secondary-Progressive MS (SPMS) Age: 50 Male More than 5 years
1
Listen to your body. If it says to rest, then rest. If it says it's a good day...have a good day!
Trevis
Living with Secondary-Progressive MS (SPMS) Age: 52 Male More than 5 years
1